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Most breast cancer patients today don’t develop severe lymphedema but it still occurs and when it does, it’s a major life event and a lifelong event.”įortunately, lymphedema isn’t all that hard to manage if caught early.Įxperts say those at risk should first and foremost protect their skin from cuts and scratches, i.e., don’t go blackberry picking without long sleeves, use bug spray so you don’t get insect bites and don’t try to pet the cranky neighborhood cat. “It’s unsightly, puts patients at increased risk of recurrent infections and pain and quality of life can be dramatically affected. “It can be relatively mild to quite severe,” he said. Gary Lyman, researcher and breast cancer oncologist with Fred Hutchinson Cancer Research Center and its treatment arm, Seattle Cancer Care Alliance.

“Any patient who has a tumor or surgery that disrupts the lymphatics under the arm or adjacent to the neck or in the groin may end up with edema of the extremities,” said Dr. If left untreated, lymphedema can trigger a chain reaction of complications, most notably sudden, serious and recurrent infections brought on by unchecked bacteria that thrive in the trapped lymph fluid. Unfortunately, when these lymph nodes (or processing plants) are blocked or damaged or removed thanks to a tumor, surgery or radiation, our cell’s “garbage” starts to pile up and the limbs begin to swell. Cells create waste (bacteria and proteins) that are picked up and shuttled along by the lymphatic system and then processed by the lymph nodes, which act as the garbage and recycling plants in the bustling city that is your body. Lymphedema is tied to the body’s cell waste disposal system, which acts a bit like a garbage pickup service. Pain, swelling and related infections can happen months, years or even decades after surgery and treatment.Īnd while early treatment with compression garments can vastly improve patients’ quality of life by keeping the swelling in check, Medicare and other insurers often don’t cover them, forcing many to live with a painful, debilitating, embarrassing and costly condition – sometimes for years.
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The National Cancer Institute calls lymphedema “one of the most poorly understood, relatively underestimated, and least researched complications of cancer or its treatment.” Others refer to it as cancer’s “dirty little secret” since patients often don’t know they’re at risk for it, general practitioners may not know how to diagnose or treat it and the condition can be so fickle that even cancer care providers can’t predict who will get it or when. cancer survivors every year, particularly patients who undergo lymph node dissection as part of their treatment, like actress and “lymphedema ambassador” Kathy Bates. Thomas’ “trouble” was lymphedema, a condition that impacts millions of U.S. After that is when the trouble really set in.” It got at least three times the normal size, my whole hand and arm. “But I got a on my finger and bacteria got in there and I ended up with a very bad case of cellulitis. “The swelling wasn’t bad at first and I didn’t think much of it,” said the 65-year-old food service worker from Seattle, who was diagnosed with cancer in 1988. Then Rebecca Thomas, a breast cancer survivor five years out from surgery, chemo and radiation, was hospitalized with a raging infection. Then, her right arm and hand began to swell, a little at first and then a lot.
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